Ola Barcelona!

I know it’s been a while since I’ve posted, but life has been both boring and hectic at the same time. I took a trip back to Canada to see my folks while Eric and Sophie stayed in Bristol. Then Eric went to Scotland for a work trip… There’s just always something!

But we’re back at it with our family adventures. And sticking with our criteria of ‘go where it’s cheap and easy to fly to’ (and warm in February), we came up with Spain as our next holiday for half-term break.

We decided to fly in to Barcelona, stay a few days, take a train to Madrid, stay a couple more days, then fly home.

So, Barcelona. Wow! First off, the weather in February is fantastic. No, we can’t go swimming or anything, but it’s 18-21°C, sunny, and comfortable. Such a nice break from the cold rain storms hammering the UK lately.

Sophie on our balconette overlooking the pedestrian street in the Gothic Quarter

We got to our hotel and while I won’t normally give hotel reviews here, I will definitely name-drop this one. The Hostel Fernando far exceeded our expectations. Yes, it says it is a hostel, but you can book family rooms. We had a room with a queen bed and two bunk beds, and a private ensuite bathroom. The beds are so comfortable and the pillows were my favourite- memory foam! It is impeccably clean, amazingly located, and such an amazing price. Sure, we’re here in the off season, but paying only CAD 125/night (taxes in) and that includes a breakfast buffet!!

So enough about that. Once we checked into our room, we went out to explore. We walked along the pedestrian street of Las Ramblas, ambled through La Boqueria (the large public market), and made it down to the waterfront (not the beach but the harbour).

La Boqueria
Spices for sale
Ham is the biggest deal in Spain. Right off the leg!
Christopher Columbus at the harbour (the infamous statue pointing in the wrong direction to the new world!)
The Barcelona Harbourfront

Also, it was Eric’s birthday the day we travelled, so we let him choose the restaurants and food. All he wanted a good authentic paella for lunch. Happy birthday honey!

Guy at the next table refused to stop photobombing! Lol!

In the evening after a long siesta, we walked through the gothic quarter, explored the Barcelona cathedral, and then stopped at a tapa bar for dinner.

Barcelona cathedral was one of the more impressive gothic cathedrals I’ve been in in a while (since Paris). However, it does charge an entry fee. Beware that in Spain they are more strict about modest clothing in their religious churches. No tank tops or shorts.

There are tapa bars were you can order off the menu and then the more touristy ones where they have it all made up and you fill your plate with what looks good. This ended up being a great choice for us because when travelling with a kid, she could choose what she wanted to/knew she would eat and then we could also get what we wanted.

Tapas, tapas, tapas!

On our second day in Spain (first full day) we had booked tickets to the big tourist locations- Sagrada Familia (Sacred Family Church) and Park Guell. Both are major Antonio Gaudi architectural gems. First up, Sagrada Familia.

While waiting out front for our tour to start

We decided to splurge the 1€/person extra that it was to get a guided tour (more than an audio tour). I know, big spenders, but sometimes we just gotta go for broke and live a little!

Well the church just blew us away. Eric had visited back in 2012, so wasn’t as surprised and stunned as Sophie and me, but they’re working so hard and fast in order to reach their goal of finishing by 2026 that they’ve even done a lot since he’s last visited. The outside is one strange oddity but then the inside and the stained glass just takes your breath away.

Gaudi loved taking his inspiration from nature, and he built all the columns of the church to look like trees… When you look up, they branch off and it looks like a treetop canopy above you. The stained glass was great, but this was my favourite part.

So we spent most of our morning here at this amazing church. We learned a lot about Gaudi from our knowledgeable and lovely guide, and why he did some things the way he did.

After appreciating his biggest work, we headed to Park Guell, an area on the hill above the city that Gaudi was architect of that was supposed to originally be a housing development and residential area. In the end, only two houses were built, but there is a large park and many beautiful architectural features. The mosaics here are so beautiful. It’s like, it was already outside so he couldn’t make stained glass windows, so he just made beautiful, colourful mosaics that shone and sparkled in the Spanish sunshine.

After Park Guell and lunch we made one more stop before siesta to see another couple Gaudis from the outside. These buildings can cost quite a bit to get into to tour and frankly, we’d had enough. We just can’t do it all in only a couple days, but enjoyed seeing them from the outside.

In the evening, we went to the Museum of Barcelona History, where you take an elevator down below the city and view the excavated ruins of a Roman city! I expected just a few ruins here or there but it was really quite extensive and large!

Also I’ll take this moment to note- a lot of tourist sites in Barcelona offer discounts for disabled people. Some are quite obvious about it and offer the option online when booking, but some you need to ask. This museum had no notation of a disabled ticket on their pricing board but I thought I’d ask. I carry my handicap pass with me in my bag if they want proof further than my cane (I’ve never been asked). They ended up giving me a discount, because I asked. He never would have offered. So don’t be afraid to speak up and ask!

On our last morning in Barcelona, we went to the Pablo Picasso museum. This was another museum that didn’t advertise disabled pricing but I put myself out there to ask and voila, my ticket was free. (Between the history museum the night before and this Picasso museum, I saved us €20!).

When entering the museum, they were rather strict about bags, and you must leave all bags in a locker. Eric and I both had small backpacks and Sophie had her diabetic bumbag. I told them that mine and Sophie’s bags were medical bags and they were fine letting us keep them. My bag carries a lot of extra rescue sugars for her and a glucagon injection kit, too.

Picasso museum was awesome

However, about 15 minutes into the museum, we hear Sophie’s low alarm go off (so loud in the middle of a quite museum!). We had had a breakfast buffet at the hostel and obviously over-guessed the carbs… She had way too much insulin on board. We had her suspend all insulin in her pump and clandestinely eat a roll of candies. But 15 minutes later, she was still low! This lasted over half an hour, giving her candies and granola bars, getting her to fingerpoke to test. Sometimes a sugar treatment just won’t work because she has so much insulin in her from her last bolus that it’s just going through the glucose as we give it to her and we can’t get her up.

Sitting in the corner of the museum eating dextrose tabs.

Fortunately, she eventually got up to 6.2 mmol/L and started feeling better and we could all breathe a lot better too. Of course, we were almost done the museum by then!

So that was our time in Barcelona! After the museum, we grabbed our bags from the hotel and headed for the train station to catch our bullet train (300km/hr) to Madrid. In fact, that’s where I’m writing this right now, on the train, with views of the Spanish countryside whizzing past me.

Spanish countryside halfway between Barcelona and Madrid

The train was actually about £30/person MORE than a flight from Barcelona to Madrid, but this way we can travel right from downtown–>downtown, no need to make the treks to and from airports, and waste half our day sitting in the airport waiting for our flight.

Now, we’re excited to see Madrid for the next two and a half days and I’ll update you afterwards! If you don’t already, go follow me on Instagram (click the photos below for links) for up-to-date photos as we take them!!!

Travelling with our diabetic child

Updated February 2020

Well November is coming to a close, so in honour of World Diabetes Month, I thought I would make a diabetes awareness post.

I know that after Sophie was diagnosed, I spent a lot of time on the internet, searching everything – including how to travel with her. I found it best to read personal accounts from people who have done it – not just generic lists or tips off websites like Diabetes UK or JDRF Canada. I mean, those were helpful, but not exactly what I needed. I needed to hear from someone who had made mistakes and figured out best practices by actually doing it.

So I’m here to share our tips and tricks, so far. We’ve only done a handful of trips; some big, some small, but we learn a little something each time.

Pack extra, and then a little extra more

You may think it’s ridiculous, especially when you’re only going away for one night, or a week-end, and you see the enormous amount of supplies in front of you, but just pack them all.
Our rule of thumb is pack 3 times what you plan on needing. If you plan on needing one pump site change and 200 units of insulin for it – you bring 3 pump sites and 600 units of insulin. See? sounds ridiculous.
There’s a few reasons for this.


One: Because you need to split up your supplies into 2 bags. Never carry all of your supplies in one bag – what if it’s lost? or compromised? Then you’ll have at least what you need and a little extra in a second bag.

Two: Life happens– duh. A pump site fails. Or heat ruins some insulin. An insulin vial breaks. A CGM sensor falls off while swimming….

Three: Your child (or you, whoever the T1D is) cannot LIVE without those supplies, why the heck would you scrimp on them? “Oh I want to bring an extra dress so I think less insulin pump supplies this time…” If these are your priorities, give yourself a shake!

And yep- most trips, you’ll find yourself bringing home 85% of the supplies you packed- cool! I just take out the insulin and keep the bags ready to go for the next trip. But every now and then, you’ll be damn glad you have it all there.

True story- when we went to London for just one night, we brought one suitcase between the 3 of us and the regular huge amount of diabetes supplies. We knew Sophie would be due for a pump change that night, so we had 3 pumps with us. I put 2 in the suitcase and 1 in Sophie’s bag that she wears on her at all times. Well, it was incredibly hot that day. So hot that the Yeoman Warders at the Tower of London had to cut their tours short (because they wear very thick, wool uniforms). The pump kits note on their packaging to remain below 30°C and we knew that the pump in her bag was probably boiling in the sun at around 40°C. I wasn’t sure that pump would be good anymore. (It has a battery inside with radio frequency receivers so that’s the part that could mess up). So we were down to 2 good pumps. Then that evening when we went to change her pump with one of the good ones in our suitcase, we filled it full of insulin and set it to prime— and it didn’t prime– Faulty pump set! We then grabbed the third and last one we had, filled it, and held our breath. It worked. In fact, we held our breath until we got home almost 24 hours later. (We kept the one that had been in her backpack but got too hot, we’d use it if we had to).
Everything worked out in the end – but only because I packed 3x what we needed.
Because of that night, when my husband sees the immense amount of kit I pack for our trips, he doesn’t bat an eye. He takes a shirt out of his suitcase to make room. Sometimes he even suggests we need more.

Security

Anyone who has travelled in the past 18 or so years knows that airport security can be a real nightmare- for all of us.
So how do we deal with so much security, a growing line-up behind us, and the huge bagfuls of needles, devices, liquids, and contraptions (above) that can’t go through the x-ray machine?
Oy.
(Tip: Early in your planning stages, contact your device(s) manufacturers and find out what can and can’t go through the x-ray machines. For example, Dexcom recommends its sensors not go through x-ray. Omnipod says their pods and PDM can, but we prefer to just keep the stuff all together and not risk it – sometimes each bag has ~$1000 worth of medical supplies in it, so lets just have those inspected by hand….)

In England, you can get these sunflower lanyards. They identify an invisible illness. How fantastic!!! These can be acquired by going to the service/help desk in any English airport and telling them why you need it.
We got one for Sophie. We also got one for me but I don’t need it as my illness isn’t invisible in an airport- they see me walking with a cane and are usually quite helpful.
However, only British airports recognise these lanyards right now. We hope that one day, this catches on worldwide.

Anyway, with this lanyard, we can take the handicap line through security (again, we would anyway because of me and my cane, but I’m assuming that most people reading this don’t also have someone in the family with MS… though that correlation is a topic for another day).

When we get to the line, we are prepared and we need to be brisk. We quickly self-identify to the nice folks running the x-rays and security lines that we have some medical devices that cannot go through the scanner and need to be hand-inspected. We always have a doctor’s note to prove this, though they hardly ask for it. (We’ve been asked for a note once when we were moving to the UK and had 6 months’ worth of supplies in our carry-on that all needed to be inspected by hand; then we were asked again at the Madrid airport where I was worried that the letter was in English, but he asked to see her passport to correlate the name on the letter, and then let us through to have hand inspection).

The diabetes bags are always packed on the TOP of our hand luggage so we can grab them quickly and pass them to the security officer. Then Eric and I split up. I realise this is easy to do as we are 2 parents with 1 child. One of us always keeps an eye on the diabetes bags (a: to not lose them, b: to make sure they don’t get sent through the x-ray machine, and c: to answer any questions to the security officers about what is in them) and one of us keeps an eye on our daughter. She’s 11, she can handle walking through the metal detector by herself, but because of the devices she wears, she often sets it off, and they have to pat her down, or swab the devices, which they’re not allowed to do without a parent present.

When we’re in a foreign country and we don’t speak the language at all, it’s a whole new ballgame. We are trying to make sure to look up the words for insulin, diabetes, medicine, ‘no x-ray’ and ‘medical device’ in the language before we go. I then make sure that these are on or in the clear diabetes bags so that they can be seen.

This has proven very important to do in the countries where we don’t speak any of the language (Italy, Spain), as the airport security agents aren’t part of the tourism industry and you can’t expect them to speak any English. In both Italy and Spain, we had to point to these notes to get our point across. (In France, Eric is bilingual in French so we were okay). Each time, it was these little words on the notes that saved our supplies.

Bottom line – be prepared. Have the diabetes bags separate, easy to grab, and a doctor’s note from the clinic (I have yet to encounter a clinic that won’t provide this). If you don’t feel at all confident in the language, have a few important words pre-translated and written out to help you through.

Lows

As you know, hypoglycaemic events (low blood sugars) will happen. Every type 1 diabetic is always on the lookout for them and if they are hypo-unaware, then hopefully they have a continuous glucose monitor or a diabetic alert dog to alert them of falling glucose levels.
However you monitor your child’s low glucose, the main thing is to then feed them glucose to get it back up to a healthier level. We all have our tried-and-true ways of doing this while at home, but when travelling it can be very different.
Something to know before you leave home is how to read nutrition labels in the location(s) you are travelling to, because they’re different everywhere. Know the word for carbohydrates in the language of the country you’re visiting. Sometimes this is obvious- and sometimes you may be visiting a country with a very different language and maybe even with a different alphabet – so knowing what their nutrition label looks like and what word is carbohydrates could be super important!

Photo of my daughter going low in the middle of touring the Pablo Picasso museum in Barcelona… Stuck in a corner downing dextrose tabs because you ‘can’t eat’ in a museum and I thought dextrose tabs were more appropriate for me to say she’s taking medicine….


Sugar can be found anywhere in the world, so it’s not an immediate worry – you will find something to treat lows. But if your child is picky, or you like to be very specific about how many grams of sugar they get for the low, it’s best to come prepared. Don’t assume you’ll find what you want, or even a close substitute in another country.
But no matter what, always, always, make sure you have some on you. If you’re travelling and walking around all day, there may be some unexpected lows, even a lot of them. Having to try and find a store in an unfamiliar area and buy candy/juice/pop in unfamiliar packaging in an unfamiliar language with unfamiliar currency is just not a stress you need at the moment of a low.


Time Zones

This is another aspect of travelling that no one likes, but I never thought of as anything more than an annoyance until we were travelling with a diabetic.
You know how you often have different insulin-to-carb ratios for different times of the day? Or different basal rates throughout the day programmed into your pump? Well, when you just jump 3, 5, or 8 hours and your body has NO idea what time it is; if it just ate breakfast, lunch, or dinner, then you have no idea how much insulin to give it!

Before we moved here and put Sophie’s body through an 8-hour time change, we researched different methods that some diabetics used. Some changed their pump an hour a day. Some stayed on origin’s time for a few days. There were a bunch of options. We went for the rip-off-the-band-aid approach and did it all at once.

When you rip off the band-aid and change the time all at once like we did, be ready for a solid 24-48 hours of wonky blood sugars. But we stuck with it, made her eat on schedule, and they started to make sense again by the second day.

Everyone will have to come up with a plan that’s right for you or your child regarding time changes – it may have to be by trial and error. Start with what you’re most comfortable with and see how it goes.

Eric changing the time in Sophie’s pump by 8 hours as we landed in England.


Those are some of our bigger talking points. Keep in mind, we’re still learning, still experimenting! Below are some more quick tips we’ve picked up along the way:

-Call your airline ahead of time, they can grant you extra hand baggage which can be invaluable when travelling on a budget airline that restricts everyone to one small bag each! If you’re travelling with a companion, you don’t have to pay to select seats together, you can just call ahead and request they are seated next to you as a medical companion. I have yet to encounter an airline that won’t do this.

-Watch the temperatures of your bags. Certainly, keep the insulin in a cooler pack like a Frio wallet, but just as I explained above with our London day-trip, certain supplies shouldn’t get too hot or cold too. These are usually labelled on the packaging. And no, you don’t have to be ridiculously strict about this, but you also don’t want to let your black suitcase sit in the hot sun on a 30°+C day while you sit on the beach and let it bake your supplies.

-If you’re on a longer flight that provides drinks and meals, don’t request the diabetic meal! They’re gross, and a type 1 doesn’t need it, you just have to guess the carb count.
As for drinks, I have yet to encounter a comfort drink trolley that offers anything other than Diet Coke (or Pepsi) as a sugar-free option. If your child wants to drink something other than water or caffeinated cola that they don’t need insulin for, plan ahead and buy some diet pop in the airport (once you’re through security).

-If your child uses a phone for their Dexcom or any diabetes management, know that you do have to put the phone into airplane mode. Airplane mode will first turn off the transmitting function of Dexcom. However, you don’t have to give in and live on fingerpokes. You can go into the phone’s settings and while in airplane mode, manually turn on Bluetooth. If Bluetooth is on, Dexcom will transmit to the phone and alarm, if needed. However, it will not send the data to any followers.

-Don’t forget to pack back-up needles/pens! (So this includes long-acting insulin!) We all know the pump can die completely. Or she could drop it in a toilet! We have to be prepared to always give insulin- always.

I know it all sounds like a lot of check-lists, warnings, and planning, and it is – but we also believe that the opportunities that travel gives our daughter are well worth it. Even though she’s diabetic? Especially because she’s diabetic. Because she needs to see that she has no boundaries in this world, she can do anything, go anywhere – it just takes a little forethought.

Please feel free to comment and leave any tips or tricks on travelling as as diabetic/with a diabetic child. We all need to share the info we learn along the way!

À bientôt, Paris!

Well Paris, it’s been swell. Real swell. We’ve had an amazing week in the City of Lights. We’ve seen everything we wanted to get to and more. We indulged in many delicious French meals and ate our weight in baguettes. I walked more kilometres than I truly thought possible, for me. Many memories were made. But home awaits.

On Tuesday, we woke up early and caught the train out of town to go see Versailles. We had timed tickets for here at 9am. I like the attractions where we can buy time-slot tickets. It keeps the amount of tourists inside with you to a minimum, as well. (Though there were still thousands).

Versailles is huge. Bigger than huge. Immense. Gigantic. The castle itself is ornate and an incredible tour, but then you head out into the gardens that span acres and acres. We were there on 29 October and it was the last day of the year that music was playing in the garden and the fountains would be going. They were starting to cover all the outdoor statues in the garden too, to protect them for winter.

After enjoying some walking around until I could walk no more, after we’d seen some beautiful fountains and music shows, we rented a golf cart for an hour to tour the rest of the grounds. This seemed like a wise investment at 34€ for an hour because the little train/shuttle that takes you around the grounds is 6€/person each way… So unless we were willing to walk the 5+ miles (I wasn’t), we had to pay. This way we got to see all the other little areas they built (but we didn’t make it to Marie Antoinette’s peasant village, as it started to rain).

All in all, we were blown away by the grandeur at Versailles. We were so happy to have made the trek out there.

We almost had to leave Versailles early. Sophie’s blood glucose was up to 23 and her Dexcom wasn’t giving us a signal. We’d been having troubles with her insulin pod since we put it on Monday night. We weren’t sure if it was the pod, the location, or the insulin, but something wasn’t working well. However, we gave her some huge doses of insulin and she started coming down. (Eventually, we changed this pod at 1am on Wednesday night and it’s been infinitely better since then).

After our touring, we stopped in the town of Versailles at a small local crêparie for some amazing savory and sweet crêpes (they had a deal for one savory then one sweet, with a ‘bowl’ of their hard cider).

The only food picture you’ll get out of me this trip. I promise.

On Wednesday we let ourselves sleep in a little bit (vs waking up at 6am for Versailles) but we were still on the first river cruise tour of the day. That’s right, we went full tourist and boarded a tour on the Seine. It was really neat to see the city from that vantage point. There were way more prisons than we knew! Haha.

Then in the afternoon we had some coveted tickets to the Leonardo Da Vinci exhibit at The Louvre. This exhibit was in honour of the 500th anniversary of his death, and was almost all of his known work together in one place. The things they couldn’t have there (like the Last Supper or Salvator Mundi), they had reasonable replicas done by his own students in his own studios (under his tutelage). After a lengthy court battle with a Venetian museum, they even acquired The Vitruvian Man, which was a sight to see.

My favourite

What really blew me away was that they had many of his notebooks. We could see how he studied. He insisted on studying botany in order to be better able to paint trees and flowers in the backgrounds of his portraits.

He studied anatomy in order to be better able to paint the human form.

It was all just amazing. We learned so much about a genius mind well ahead of his time.

The next day we headed to Montmartre, the highest point in Paris and the home of Sacre Coeur.

We didn’t take all those stairs up. There is a fennicular there that you can take for the price of a bus ticket. Worth it! We took the fennicular up and walked down.

Once up on top, the Sacre Coeur was just beautiful.

Unfortunately it was a cloudy/slightly rainy day and the view of Paris outside of the church from this vantage point was poor.

I needed to sit and rest after the church, and then we happened upon a tourist train. It said it was a 35 minute ride and tour through Montmartre so we decided to do it. It turned out ideal. I got to rest my legs and we got the full tour of the area.

There are many of these staircases from one block to another due to how steep the whole area is.

After Montmartre, we took the métro to the Latin quarter and got off at The Sorbonne in order to go visit the Musée Curie… The museum dedicated the Marie and Pierre Curie and their discoveries in physics and science. It was just astounding. We were at her actual [decontaminated] lab and office. So many discoveries made there, so many advances made.

These statues were in the Curie garden. The actual garden right outside her laboratory where she liked to rest and take breaks. Sorry, I was seriously fangirling and science geeking out.

Finally, we had one more morning in Paris. In retrospect, I think we stayed maybe one day too many. We could have got by with a comfortable 6 days. My legs were very, very weak by our last day and I had to save some strength in them knowing how much walking an airport entails. We took our last morning easy. Our VRBO host was very fluid in allowing us to check out late, as our flight wasn’t until after 9pm. So we enjoyed a morning exploring the area around our apartment; specifically, the grand Paris Opera House. Yes, songs from The Phantom of the Opera were in my head the entire time.

The Opera House

The 2 large, gold, tractor tyres are an art installation from last December, met with much ire. I can see why.

Incidentally, all attractions in Paris are awesome at giving handicapped access and making sure that handicapped persons don’t have to wait in line, but the Opera House gives free admission to handicapped persons and one accompanying person. Plus children under 12 are free, so we had free passage for the day!

There are group tours, but we opted for a self-guided tour and were very happy with it.

Alas, that was the last thing we did in Paris. We then cleaned up our apartment and checked out, headed to the airport. Our Parisian vacation is over and we’ve had such a dream of a time.

We can’t wait for our next adventure!

Day trip to London

We had to go to Ruislip (just north of London) where the Canadian military detachment is for Eric’s in-clearance (yes, they said he had to bring the whole family!) so we decided to make a trip of it and go to London for the day!

Unfortunately, it turned out to be a record-breaking hot day (33.5°C) and we were just melting!

Taken at 7am waiting for the train to London while we were still fresh-faced!

What to do with only 1 day in London? Well Sophie’s never been, Eric has lived here for a few months, and I’ve visited for days here and there. We know we’re going to be back a lot in the next 3 years and have a lot of opportunity to see everything we want and it didn’t need to be done all at once. So we decided to give Sophie a tour so she could get her bearings and see and decide just what it was that she wanted to be doing in those future visits, help her build her bucket list.

Sophie enjoyed the view

We took one of the Hop-on, hop-off bus tours. I always find these a good value in a big, new, city where I’m looking to hit all the tourist hot spots in a day or two (you can usually buy 1- or 2-day passes for these tours). We look for a tour that has a lot of buses (that run frequently), that have more buses with live commentary rather than just recordings (it’s always more fun to hear anecdotes from someone who’s been living there their whole life), and tours that have more than one line (the one we chose had 4 lines that criss-crossed the city plus a river boat we could use that we just never had the chance to). We also picked our company based on who went close to our hotel. Then we pre-paid for our tickets online. This saved us money, but also a lot of time when we wanted to join the tour.

We spent the first little bit touring around. We had a great guide who was informative, funny, and personable. I’m not one of those people to take many photos from a moving bus, but here:

Big Ben (and its tower) are encased in scaffolding for the next few years…. It sort of ruins the skyline of London, but it’s what you gotta deal with in order to preserve these things….
Going across Tower Bridge

We took the bus to the Tower of London and hopped off. We also pre-purchased tickets to the Tower so that we could save a few pounds but also avoid the lines.

Just when we got to the Tower. A lady asked Eric to take their family’s photo and he obliged. Then she insisted she take ours because “this lighting is terrific!”. She was right.

It was starting to get hot by now. The sun was baking. We had dropped our suitcases off at the hotel and they put our main insulin supply in the fridge for us, but Sophie’s small diabetic backpack had a spare vial of insulin in it as well. We don’t have a Frio case at all or any sort of cooler, as we haven’t got around to getting one yet. If you’re soon about to use the insulin, it can stay at room temperature up to 30 days. But insulin can never be frozen and never go over 30°C or it will be denatured. Well, in the direct sunlight, it was well over 30°…. We tried a while to always hold the bag in the shade, looking a little ridiculous as we moved about, but in the end we had to admit that there’s no way we can test if that insulin is still good, apart from a few bolus injections and Sophie won’t allow that. We can’t risk filling a 3-day pump with bad insulin and then having to discard the whole pump once we realise it’s not working.

So anyway, we got to the Tower and it was hot. And then we saw the poor Yeoman Warder…

He deserved a medal for this…

He said in the beginning that he didn’t want to hear us complain about the heat, and he was right. When the weather is bad (rain, etc) they shorten the tours from 1hr to 1/2-hr and he did for us too. They just couldn’t have everyone standing around in the heat that long, guests included.

But it was a lovely tour and we learned a lot about the Tower of London. Sophie and Eric went in and up the Tower itself. We saw the jewels, we walked the ramparts, and we had lunch! As we were leaving, another family came to say hi, just because they’d seen Sophie’s Dexcom and were a fellow T1 family. They had a little boy on the Dexcom and Omnipod and they said they just had to say hi to another T1 family on holiday! I think it’s so nice when someone does that and I do it myself, but Sophie’s still shy about it. Yet, she is upset if we don’t, though. (Tweens, amiright?)

Tower bridge from the ramparts

After our time at the Tower, we hopped back on to a bus and decided to head towards King’s Cross station. This was a surprise for Sophie. Her 11th birthday is in a week and a half and well, we really didn’t know what to get her. So since she is a massive Harry Potter fan, we said we’d take her to platform 9-3/4. I, personally, am not a fan, so it was all Greek to me, but seeing her so excited made me very happy too. She got her photo taken and then we took her to the store there and we said, pick out what you want, we’ll get it for your birthday! Her face was priceless.

The professional photo we bought

Sophie bought that Ravenclaw scarf (100% Scottish lambswool made by the same company who made the original scarves worn in the movies) and a Ravenclaw hairbow. She’s a happy girl.

By then we were getting tired so we hopped on the bus yet again and just let it tour us back to our hotel. We got to see more of London and then crash in our air-conditioned room. (And I mean crash).

Me, in front of a London city-scape, looking hot, tired, and deshevelled.

We went back out again in a bit for an Italian dinner then back to our room. Sophie was due for a pump change – here is where I’m so glad for our ‘bring 3x what we need’ rule. We tried to start up the pump and it didn’t activate properly!!! So we opened a second pump and tried it and held our breath and thankfully all was well. We would have had just enough insulin and one more pod to do it a third time, but barely (with the vial of insulin we now have to throw out due to heat!).

Anyway, pump change in a hotel again but we’re old hat at it now and it eventually went well. We have already ordered a Frio wallet to be delivered later this week for all our future travels to protect our precious insulin!!!

That’s it! That’s our day in London. We had to call it a night and hit the hay so we could be up early to leave for Ruislip at 7am. We were in offices all day long there but felt thoroughly welcomed by everyone at the Canadian detachment and know they genuinely want to help us acclimate and settle in to our home here in England.

London is a beautiful city and we can’t wait to come back on many day and weekend trips over the next few years!

Taken from inside the Tower of London